Illness and death in media and research
This page is not available in English. Below is the Norwegian page translated by Google.
The Transparency Committee delivered its recommendation on April 30 this year. The committee was to clarify some rules for a phenomenon that has gained widespread use in recent years: photography, filming and audio recordings at school, in child welfare and at health institutions. We know the phenomenon from TV series that Helene checks in, Hos Peder, Insane and 113 - where we gain insight into the experiences of patients and employees. The committee's recommendation has been aptly named Transparency in Borderlands - which is a precise summary of the fact that it is maneuvered here in a fairly confusing landscape and where it is often difficult to know where the limit for transparency and what is ethically sound media production goes.
Health research shares the media field's interest in patients' experiences of health, illness and death, but is regulated in completely different ways. Health research is subject to the Health Research Act and must also adhere to a number of research ethical guidelines and supervisors. With the introduction of new privacy regulations (GDPR), challenges related to privacy in research have become even more pronounced. We ask if the media has greater ethical room to stage illness and vulnerable aspects of human life than health researchers have, and if so, why? And do researchers have anything to learn from the media industry in this field, and vice versa?
Meeting Chair: Jon Rogstad
Kjersti Thorbjørnsrud, Media Researcher, Department of Social Research
Per Kalbakk, Ethics Director at NRK
Lisbeth Thoresen, associate professor, University of Oslo
Anne-Kari Torgalsbøen, Professor of Psychology, University of Oslo
Cecilie Ramona Kåss Furuseth, a journalist, and well known among others from the production of the NRK series Insane,
Reidun Førde, professor of medical ethics, University of Oslo